Steve, I am so saddened to hear this. I always think of when I first joined FSM… You were one of my first buddies when I joined this site. Your kindness, encouragement and willing to get the new guys joining builds, talking, and chatting about whatever. I really cant tell you how much I appreciated that. It made things much more comfortable to start out and try new things.
100% in my families’ and my prayers. All the best wishes and I really hope that new medicine will work and good news comes from here on out!!! Keep fighting through it. You have all our support my friend!
Steve…I am truely sorry to hear this. Not only am I going to pray for you, but I will make sure my fellow church members do so also. I hope the foundation you are going to contact will help you cover the expense of the medication needed to help you FIGHT this. As BrandonK stated…PLEASE don’t hesitate to drop me a PM and I will mail you a “Stash” package every month. Stay strong Steve, you will be thought of daily.
Modelcrazy Steve, my prayers are with you. I was so sorry to read about your disease, and pray to our Lord above that He will heal you. I will pray that He sends His grace to you, and that you receive it soon. Hang in there, Steve, and don’t give up.
Steve, I think you’ve got the support of everyone here on this forum. I enjoy reading your posts and seeing your builds. As everyone else has said, you’ll be in my prayers (and I really mean that). All my best to you, Eric
Thank you to everyone.
Just a quick update.
I started my new medication, and when they say some of the side effects are nausea and tiredness, boy they aren’t kidding. Another side effect is sensitivity to the sun, so much so that the manufacturer sent me a tube of SPF50. In Boise at least I won’t have to worry about that until summer time.
Now Walgreens, the pharmacy that provides these meds, told me that the co-pay is $2000 per month. This is lower that I had originally thought, unless I misunderstood them and they are counting the manufactures grant. The manufacturer is giving me $2400 for the year so if the $2000 co-pay is not including the manufacturer grant I will have enough to cover the year, YEA!
I should be able to clarify this when Walgreens calls me back later this week.
Steve
Don’t feel bad about the sun issue. I have been in Florida for most of my life (just turned 60) and now I have become sensitive to the sun too. Kind of hard to avoid in the “Sunshine State” [H].
glad top here this Steve. sun? i have heard of that but we modelers tend hang out with a lot of artificial light. now if side effects included a bad reaction to plastic cement…
I cant believe I read this only now. Hang in there, Steve. Prayer is such a powerful thing. You wont believe how many miracles Ive seen by just praying. And I will pray for you.
Well I have been on this medication for over a month now. The good news is that I have secured enough help to pay the co-pay until next December.
However, I have noticed something that I’m not sure is caused by the meds, or me.
I don’t really care about anything.
That’s it. I particularly noticed it last weekend at our local IPMS meeting and have noted that it’s been going on for the past few weeks. I was listening to one of the guys talking about his build and I thought “I always wanted one of those, but what’s the point? It’ll just sit there and do nothing after I’m finished, what a waste of money” I never thought like that before. In fact I look at my builds on the bench and I’m not interested in working on them.
I noticed I don’t sleep well which makes me a little irritable and maybe that’s the cause of this apathy, but I don’t like it. If this continues I will stop the medication. I would rather enjoy my time than have a year or two extra and not care.
I have tried an over the counter sleep aid which makes me sleepy until I lay down, then I’m wide awake. I’ve tried a little shot of something adult, but that makes me feel odd and the same thing happens after I lay down. Now I’m on Ambien which at least for now, is not helping.
Starting next week, I have 3 weeks off without pay (not my choice……and merry Christmas by the way) so maybe I can catch up on some sleep and see if that’s the cause.
I don’t like it, I don’t like it one bit.
i can’t speak to every issue but i have had the “what’s the point” thoughts when looking at my stash as well as my completions. it passes in a day or two at most. usual i pull out another hobby, jigsaw puzzle, computer wargames, reading, and recharge.
as for work on the bench i have that now with the K-5 RR gun. i haven’t worked on it in 2 months. i have built other stuff. also have a bunch of shelf queens. maybe you need a different subject like dinosaurs or cars or sci fi, something you don’t build much if at all.
the not sleeping well can screw me up. fortunately it doesn’t happen often and usually my own fault.
Jumping in on this conversation. It really saddens me to read of your situation. I have some problems as well, but nothing like this. I wish you the very best, and hope for a far better outcome
Steve- I went through the "don’t care-what’s the point " deal when my heart issues hit hard and took me out twice with 3 heart attcaks in 36 hours and 3 stents in two go arounds, 5 years ago. Finally got over most of it except for the work side thanks to the wife. Now that she is gone, I get 4 hours of sleep a night, so I know where you are at. Got back into this to have something to do after she passed, and have a bunch of builds in progress and nothing finished, so it still is around for me too. Try to stay busy at whatever you think you want to do. Hard to do, but stay positive.
All of us here on the forum are here for you anytime you need a hand or a lift up.